Having and taking care of a child is difficult within itself. If the child is sick or handicapped, it's a much harder responsibility, but you gladly embrace it harder than your life itself.
My 8-year-old (9 next month) is sick and handicapped. It's been a roller coaster ride looking for a cure or the best therapy/care. Within his condition that has affected his nervous system and absorption of nutrients (similar to Celiac decease), there are several schools of though from conventional medications to trying to rebuild the damaged soft tissues (stomach, nerves, chemical reactions, etc).
Right now we're working with a doctor in Eastchester, about two hours away from where I live, who's helped my little boy in about eight months more than all these other doctors in the past eight years. If anyone's interested in getting touch with this doctor, contact me via Twitter (@project05952381).
It's been over eight years holding on to my faith on a cure and/or therapy that we keep looking. This blind faith that God would lead us to a cure and/or therapy for my little boy might be the reason why I started going back to church (whatever Christian denomination) and eventually opted for FAPC (http://www.fapc.prg/). I even had my youngest boys baptized at FAPC (http://project05952381.blogspot.com/2009/05/two-baptisms-two-wet-ones-to-go-please.html).
In all, I keep holding on to my blind and at times senseless faith. I know God will deliver, but I wish I knew when and what. In all, everyone has a cross to bear and mine is my child, my beautiful sick child.
